Volunteers Needed for Study

We are looking for volunteers to fill out a questionnaire that assesses attitudes towards genetic testing and experiences with the newborn hearing screening process.

Specifically we would like to hear from:

1) Parents of a deaf or hard of hearing child

2) Deaf or hard of hearing individuals

3) People who work with deaf or hard of hearing individuals

4) Parents of a hearing child who initially did not pass the newborn hearing screen

Click here to find out more about this study and see a copy of our questionnaire.

Volunteer Your Time

Some projects are never undertaken due to lack of appropriate personnel. If you are interested in volunteering for the Center, send an email to hearing@hms.harvard.edu and find out more about opportunities for volunteer work.

Personal Contribution

Currently, research studies have uncovered lots of information about the genetic causes of deafness, and more is being discovered every day. As a center, we are interested in translating these discoveries into useful applications. This includes:

1) Developing educational resources about genetic deafness and genetic tests for the deaf and hard of hearing and their families

2) Developing genetic tests for newly discovered deafness genes

3) Providing better genetic counseling services to keep pace with expanding genetic testing

4) Promoting research on genetic deafness in the hopes of understanding how different forms of genetic deafness occur and how they might be treated in the future.

These projects take time, money, and personnel, resources that are always in short supply. Send an email to hearing@hms.harvard.edu for information about ways to help us through your personal contribution.

08/15/01